Mar. 15 at 9:56 AM
$RHHBY I have been taking Evrysdi for quite some time now, and my total treatment costs (Spinraza/Evrysdi) already exceed
$2 million USD.
I have been in inpatient rehabilitation for 10 weeks and am loading my muscles daily.
The healthy muscles are getting stronger, and the affected muscle groups are being reactivated and starting to work again.
I am reaching milestones that I was not able to achieve before. This motivates me to keep going.
The rehab costs approximately
$8,000–
$10,000 USD per month, but I have top therapists who push me, monitor me, and observe me closely. Leg press, butterfly, cable pulls and more are all part of it.
According to the senior and chief physicians in Germany, I am the only person with this condition who is really going all in and fully committed.