Sep. 15 at 6:14 PM
$AUTL
(I have been oversharing to give people a real life example of this treatment)
A personal AUCATZYL update - my wife is back home now. She spent just under 3 weeks in the hospital, preceded my 4 days of outpatient chemo leading up to the infusions.
The first infusion was just 17 ml. That's 2ml more than 3 tablespoons. It didn't really look like anything. The second infusion was the rest of it.
It wasn't easy. She had the expected fevers but thankfully nothing too bad at all there. However, she definitely had some other tough Cytokine Release Syndrome (CRS) reactions, including some real pain for days and some neurological stuff. The neuro: most of it has cleared, while others symptoms hopefully will ease up and clear. It's still early. All in all, however, her levels look good. Strength is slowly returning. She was discharged yesterday.
Next is frequent clinic visits (daily, or every other day) for a while, and then that will become less frequent.
Thanks for everyone's prayers and well wishes. We truly appreciate it.
On the $ side, I still haven't seen any charge on insurance. They often file late, so I'll provide an update once I see it.