Aug. 3 at 1:49 AM
$CAPR @rogertrades @Markland55
Hiring lobbyists is a great idea. They have great reach in Capitol Hill. Lawmakers who can tap the President.
The kids have another option, a drug that repairs and reverses cardiomyopathy. A good sound heart translates to a happy body and soul. The heart is the last to die. A healthy heart lives longer.
Yep Deramiocel doesn’t kill and is effective, unlike an approved drug that cost
$3.2 million per dose.
Elevidys has been in trials and investigated since 2018. A few years later these sick kids still loses ambulation and continues on that spiral of hopelessnes and into a wheelchair.
$SRPT has videos of 6 year olds swimming, running upstairs, but compared to untreated kids with DMD the difference is not significant.
Otherwise, Doug would be shouting from the top of his longs, Elevidys is effective, it’s effective. Duh it ain’t! Lol it’s the
$3.2M.
Insurers are pushing back and with the latest deaths, it’s gonna be harder for patients to get.
